Newly Diagnosed

For Families with a New T1D Diagnosis

Newly Diagnosed

A T1D diagnosis can leave you with many questions. You may wonder what caused it, or if there’s anything you can do to reduce its effects. Many people want to know where to turn for answers and support. TrialNet is here to help guide you every step of the way.

If you’ve recently been diagnosed with T1D, you’re not alone. Over 1.2 million Americans are living with T1D.

A diagnosis of T1D is life changing, but it does not define you. People with T1D have gone on to become physicians, lawyers, professional athletes, Olympic gold medalists, actors, rock stars, racecar drivers, and a lot more!  

Living with T1D is challenging, but working hard to manage the disease will make a difference. Studies show that people with T1D can live just as long as those who do not have it.  Here are some things to keep in mind:

  • Checking your blood sugar is important. It’s also important to keep in mind that the number that shows up on the glucose monitor is neither good nor bad. It’s just information to help you make a decision about your diabetes care.
  • Get support from family, friends, your healthcare team, and online T1D community.
  • Get involved in your local T1D community—reach out to your local JDRF and ADA, participate in events, and help spread the word about TrialNet screening.
  • Find out about research studies and your eligibility.
  • Be kind to yourself. You will have ups and downs, just like everyone else.

Living with T1D is not a one-size-fits-all approach. Each day may feel like a bit of an experiment, especially in the beginning. While there is a lot to take in, there are many tools available.

Your primary care physician, endocrinologist, dietitian, nutritionist, and diabetes educator are all there to help you reach your goals. Learn as much as you can, and take advantage of resources from your care team. You CAN do this!     

Managing T1D

People with T1D will need insulin throughout their lives. Some people choose to wear a pump that delivers a steady dose of insulin 24/7. Others use injections or insulin pens to balance their blood sugar. You need to check your blood sugar throughout the day in order to make an informed decision about your diabetes care. 

Food brings blood sugar up and insulin brings it down. But people with T1D know that everything they do affects their blood sugar.  Exercise, stress, sleep (or lack of), puberty, and even mood can cause changes in blood sugar.

Newer technologies like Continuous Blood Glucose Monitoring (CGM) make it easier than ever to check your blood sugar and make corrections before you have symptoms. Parents can even monitor young children’s blood sugar on smartphones. Alarms can alert you to low blood sugar while you sleep.

You will work toward blood sugar goals you set with your healthcare team. It’s a balancing act.  Some days will be easy, and some days won’t seem to go right no matter what you do. Be sure to take advantage of all the resources available to you. You’re not in this alone!

Have questions? We’re here to help.

Call 1-800-425-8361 between 8 a.m. and 5 p.m. ET.

Email or, connect with us on social media.

How TrialNet Can Help

Studies for Newly Diagnosed

Many people newly diagnosed with T1D are still making some insulin. TrialNet studies for people newly diagnosed are searching for ways to maintain insulin production for as long as possible. Research shows that maintaining even small amounts of insulin production results in fewer complications, better blood sugar control, and lower A1C levels. Reference

Risk Screening for Relatives

With a recent T1D diagnosis in your family, you’re probably wondering if you or other members of your family are at risk. It’s a fact that relatives of people with T1D are 15 times more likely to develop the disease than the general population.

TrialNet offers Pathway to Prevention screening free to relatives of people with T1D to evaluate their personal risk of developing the disease. This unique screening can identify the early stages of T1D years before symptoms appear. It also helps researchers learn more about how T1D develops and plan new studies exploring ways to prevent it.