What to Expect Next

For Screening Participants

No matter what your screening results, we’re here for you. Our goal is to detect T1D at its earliest stage and give you the opportunity to help change the course of the disease.

If your results are negative, you will receive a letter in the mail. If they are positive, a TrialNet representative will call you to discuss your results and next steps.

Negative (no autoantibodies)

For children under 18 with no T1D autoantibodies, we encourage rescreening every year until age 18. We will send you a reminder when it is time to get rescreened.

Individuals age 18 and over with no T1D autoantibodies do not need to be rescreened. While your chances of developing T1D are lower than someone with autoantibodies, autoantibody status can change. You can still develop T1D at any age. If you or someone you know has symptoms of T1D, be sure to see a healthcare professional right away.

You can continue to help advance research by spreading the word about TrialNet and encouraging other family members to get screened.

One autoantibody

For those who test positive for one autoantibody, the next step is to come in for further testing. Your test results will tell us whether you qualify for a prevention study or monitoring.  

Two or more autoantibodies

Individuals with two or more autoantibodies are in the early stages of T1D, and their lifetime risk of clinical diagnosis (stage3) is close to 100%. Whether you opt for a prevention study or monitoring, we’re here to help you take the next step.

TrialNet offers clinical trials testing ways to slow or stop disease progression. If you qualify for a prevention study, we’ll sit down with you to answer any questions you have and give you all the information you need to make an informed decision.

If we don’t have a prevention study that’s right for you, you can still make a lasting contribution to T1D research by signing up for monitoring. You’ll come to a TrialNet location for follow up once or twice a year, depending on your test results. And, when new studies become available, you’ll be among the first to know!

No matter where you are on the Pathway to Prevention, participating in research is empowering. It gives you the opportunity to make a difference and be a part of the solution.

We’re with you every step of the way….